There are nearly 44 million people in this country with arthritis.
It accounts for 427 million days of restricted activity (no wonder
I feel so old), 156 million days in bed, and 45 million days lost
from work (way over most peoples PTO). This makes it the leading cause
of industrial absenteeism and the second leading reason (after heart
disease) for receiving disability benefits (MARCC<1992; Dubbert
et al., 1990).
Arthritis costs our economy over $35 billion per year in medical
care and lost wages, or 1 percent of the gross national product
(3 percent of the pretty national product). This figure is expected
to sore to $95 billion per year by the year 2000 (Barrow et al.,1990).
People with arthritis visit their doctors an average of eight times
per year, double the average for other conditions. These visits
usually occur on Easter, Thanksgiving, Christmas, Labor Day, Memorial
Day, Martin Luther King Day, Ground Hog Day and Rosh Hashanah.During
Leap years the average number of visits goes up to nine per year.
In response to the growing number of people affected by arthritis,
the National Arthritis Act was passed into public law in 1975. This
act established funds for multipurpose Arthritis Centers (MACs),
which were required to provide educational, health services and
research programs. As a result of these MACs, as well as research
sponsored by the National Institute on Disability and Rehabilitation
Research (NIDRR), investigators from many fields such as sociology,
psychology, social work, public health, and patient education, have
begun to work in concert to pursue arthritis research.
Arthritis is a scary word. It includes more than 100 different
diseases that cause inflammation of the joints, often resulting
in pain, swelling, redness, and in more serious cases, loss of mobility
and even tissue, bone and organ damage. Now we know why arthritis
is a scary word. It is important to understand your disease if you
are sentence to a life term together. It is derived from the Greek
arth (joint) and itis (inflammation), thus inflammation of the joint.
The joint is where two bones meet and consists of six parts. Cartilage,synovial
membrane, Bursa, muscle, tendon and ligament. If you have been told
you have arthritis that means something is wrong with one or more
of the above parts.
The six most common types include:
Osteoarthritis, which attacks weight-bearing joints,
such as knees, hips, and ankles, affecting approximately 15.8 million
Americans. This type effects many people as they get older. Onset
is usually between the ages of 45 and 90. Relatively few are severely
disabled by this disease, although pain and local disability of
specific joints do often occur. Both males and females are equally
effected. The main effects are cartilage degeneration and bone spurs.
Fibromyalgia, a condition resulting from diffuse
musculoskeletal pain, often incapacitating in its severity, and
effecting nearly 6 million Americans, 80 percent of which are women.
Rheumatoid Arthritis (RA) is a chronic, systemic
disease involving inflammation of the joints. It affects approximately
2.1 million people nationwide, 20 million worldwide. This is the
one most people think of when they hear the word - arthritis. 75
percent of those affected are female. Age of onset is anywhere from
childhood (Juvenile RA) to the 50's. The main joints affected are
the wrists, knees and knuckles. The results are inflammation of
synovial membrane, bone destruction, damage to ligaments, tendons,
cartilage, and joint capsule.
Gout is caused by elevated uric acid in the blood,
resulting in small mineral crystals to which the body reacts with
pain and swelling, affecting approximately 1 million Americans.
Systemic Lupus Erythematosus (SLE) is a disease
that can all too often be fatal. More than 90 percent of lupus victims
are women between the ages of 18 and 50. It may include such symptoms
as weakness, fatigue, joint pain, and skin rashes. Discovered in
the early 1800s, SLE was thought to be a skin disease, but researchers
have determined it damages the kidneys, joints, heart, lungs, central
nervous system, blood and skin. It causes the body's defenses to
run wild and attack the body's cells and interconnective tissues.
SLE is difficult to diagnose because it mimics many other illnesses.
The cause is still unknown. SLE was believed to be a rare disease
until recently. Dr. Robert Lahita, a researcher at New York City's
St. Luke's-Roosevelt Hospital has stated that "A nationwide
survey indicates it may affect 1.4 million to 2 million Americans."
He speculates that 16,000 to 20,000 new cases appear each year.
It was thought that only about 131,000 Americans were affected by
this disease prior to a nationwidw telephone poll conducted by Bruskin/Goldring
of Edison, N.J., a market research firm, and sponsored by the Lupus
Foundation of America.
Ankylosing Spondylitis affects the spine and joints
of the trunk. Approximately 315,000 Americans have won this lottery.
This condition can also be found in conjunction with other diseases
mentioned.
Psoriatic Arthritis is a condition that causes
pain and swelling insome joints and scaly skin patches on some areas
of the body. It is related to psoriasis, a skin condition that causes
scaly red patches on the body and for changes in your fingernails
and toenails.
Psoriatic arthritis affects about 300,000 people in the United
States. It affects men and women of all races. It usually occurs
between the ages of 20 and 30, but it can occur at any age. It affects
about five to eight percent of people who have psoriasis. So, not
everyone who has psoriasis develops psoriatic arthritis.
Usually, psoriatic arthritis is mild and requires little or no
treatment. But in some people, the condition can be severe. Whether
mild or severe, early diagnosis and treatment can help control the
disease and prevent further joint and skin damage.Psoriatic Arthritis
(PA) in it's most severe form is rare. About 25 percent of those
with the disease will have polyarthritis (my type). It is almost
indistinguishable from RA. This particular type does not discriminate
between specific types of joints and can include both weight barring
joints (hips, knees, ankles) and non weight baring such as wrists,
fingers, elbows and toes. The spine can also be involved. It also
comes with the addition feature of tendon and ligament involvement.
As you can see, life for those with one of the above or similar
disease can be extremely difficult. Arthritic diseases are usually
unpredictable. Those who have it rarely know for sure when pain,
stiffness, or deformities may occur or what part of the body may
be affected (CEMRAC,1986). The effects of this disease are extremely
diverse. People with arthritis nearly always experience pain, stiffness,
and inflammation. They may also experience higher divorce rates,
less ability to maintain gainful employment, and higher rates of
sexual dysfunction than those without the disease. (REHAB BRIEF)
Other common experiences are sleep disturbance leading to fatigue,
high levels of stress (excluding some career choices), depression,
and irritability. Low self esteem, learned helplessness, and hopelessness
are also associated with the disease. Among those suffering from
rheumatoid arthritis, 59 percent cannot maintain gainful employment,
60 percent suffer major family, marital, and sexual changes, and
42 percent suffer a dysthymic or a major depressive disorder (Morrow
et al.,1992).
Arthritis is often an invisible disease. This invisibility contributes
to adverse social and psychological side effects encountered by
many people with arthritis. Friends, co-workers, and the general
public may often misperceive an individual with arthritis as faking
the symptoms and severity, craving for sympathy and attention, and
lacking initiative. Because the symptoms of arthritis range from
very mild to extremely severe, everybody seems to know someone with
arthritis whose symptoms are relatively minor- and unfair comparisons
can be made.
The unpredictable nature of this disease also contributes to misunderstandings
of the problems faced by people with arthritis. For example, an
individual with arthritis may experience difficulties getting out
of a car parked in a "Handicapped" parking space and may
have problems walking away from the car. But, because stiffness,
aches, and pains can be reduced by walking, this same individual
may be able to ambulate like anyone else within 20 feet of the automobile;
and this can result in cruel ridicule from the general public.
Although arthritis is frequently thought of as a painful and sometimes
disabling condition, the severity of this family of diseases is
often underestimated. In the most serious cases, arthritis can lead
to bone erosion, slippage of joints, and rupture of tendons. What
is little known is that it can also lead to respiratory conditions,
infections, gastrointestinal complications, and even death (Dubbert
et al.,1990).
But! Lets not end this with a bummer. Arthritics are people just
like you and me. The condition is only one part of a person's life.
Most people are multi-farious (there are alot of parts to a person).
Do not focus on the one trait and ignore the rest of the person.
Slap them if you don't like them, but if you do like them. Show
it. Rock them, Tell them you love them. Buy them things.
P.S. I was only kidding about slapping them.
Edited by David Jacobson, MSW. |